Living with Charcot Marie Tooth Disease

Meet Diane Gracely

Diane is a 57 year old woman born with Charcot Marie Tooth disease. A rare neurological disease with no cure. She was diagnosed with CMT type CMT1A through genetic testing. Her symptoms began appearing at the age of 5 years old. Therefore have progressed over the years and severely deformed both of her feet. Follow Diane’s CMT Blog here.

Hit by a Drunk Driver

In 2015 Diane was hit head-on by a drunk driver. After all she’s been through with CMT, the accident only added to her health problems. She temporarily lost her ability to speak right after the accident. Doctors said it was caused by the trauma and head injury. Diane was also diagnosed with neck and back injuries to her discs. Eventually needing a neck and lumbar fusion.

CMT Feet

These are Diane’s CMT feet today, after extensive foot reconstructive surgeries on both feet. Also diagnosed with chronic lymphedema of the feet and lower legs. Causing severe edema of her feet and lower legs.